Virginia aged four suffers with epilepsy, PEHO syndrome and scoliosis. She is unable to sit and stand unaided due to having no control of her muscles. PEHO syndrome is an extremely rare neurodegenerative condition that gets worse with time. Her old NHS buggy was to large to fit in the car and did not suit her needs. The family were socially isolated due to being unable to go anywhere of distance, so we are pleased to have purchased them a new specialist buggy which has enabled them to access trips in the community and enhance Virginia’s quality of life.
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About Strongbones

Strongbones Children’s Charitable Trust is a national registered charity set up to help families who have children suffering from brittle bone disease, bone cancer, scoliosis, arthritis, and all other serious conditions of the bone.